This week we experienced the first time that our son was hospitalised since he was diagnosed with MCADD, a metabolic condition that limits his body's ability to utilise fats for energy. Do you or your kid have MCADD? Then, read along and don't worry, as everything will be allright!
Tomorrow it's six months since our son was born, a good moment to reflect upon the experience of being a parent of a kid with MCADD. This metabolic condition demands special attention on the feeding schedule and preparation for situations when things go different. It's good to share that this has quickly become normal for us, here are some thoughts and tips.
Just days after our son was born, we ran into trouble when our little man didn't want to eat anymore. Repeated attempts to feed him failed as he appeared to be too tired to drink from his mother. When we measured his body temperature we were shocked, only 33º Celsius! What followed was nothing less than an incredible emotional rollercoaster!
