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Daddy on Willem's Blog

Born with MCADD

Medium chain acyl-CoA dehydrogenase deficiency

Jan. 29, 2019
Our son was diagnosed with MCADD days after he was born. We experienced a metabolic crisis but were lucky to be just in time!

Just days after our son was born, we ran into trouble when our little man didn't want to eat anymore. Repeated attempts to feed him failed as he appeared to be too tired to drink from his mother. When we measured his body temperature we were shocked, only 33ยบ Celsius! What followed was nothing less than an incredible emotional rollercoaster!

My first weeks as dad

On the challenges and rewards of being a father

Jan. 24, 2019
Last Christmas my wife gave birth of our son. It's a life changing experience to become a parent. Read along for my (biometric) findings and some practical tips.

Last Christmas my wife gave birth to our son, a little boy that would change everything! It's an incredible experience to become a parent, especially if it is your first kid. It introduces a whole new way of living, having to deal with regular feeding, caring and sleepless nights. Read along for my (biometric) findings and some practical tips!

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VU Amsterdam emergency room
VU Amsterdam emergency room
Don't forget to have fun!
Don't forget to have fun!
Baby asleep, daddy at work
Baby asleep, daddy at work
Room service by daddy: smoked salmon as starter
Room service by daddy: smoked salmon as starter
Holding my son for the very first time - trying to make sense what the little man wants... (a recurring theme as I would find out)
Holding my son for the very first time - trying to make sense what the little man wants... (a recurring theme as I would find out)
My desk, daddy style
My desk, daddy style
Data from a good sleep (causing my HRV to recover)
Data from a good sleep (causing my HRV to recover)
Data from a mediocre night (with minimal HRV recovery)
Data from a mediocre night (with minimal HRV recovery)
It felt like victory to see him drinking again!
It felt like victory to see him drinking again!
Left: a full week of sleep data - right: one night in detail
Left: a full week of sleep data - right: one night in detail
Carrying a baby during household tasks is fun and useful
Carrying a baby during household tasks is fun and useful
Suitcase and Maxi Cosi where ready
Suitcase and Maxi Cosi where ready
Happy boys - giving and taking a bottle of milk
Happy boys - giving and taking a bottle of milk
Our son
Our son
Saving the life of our son - note the heart rate monitor being unable to detect heart activity (the green question mark)...
Saving the life of our son - note the heart rate monitor being unable to detect heart activity (the green question mark)...
At least he got a cool Garfield adhesive band aid
At least he got a cool Garfield adhesive band aid

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